We took our portable care home installation down to the M Shed today for the Celebrating Age festival, organised by Age UK Bristol. Our recent work was displayed in the installation and we had a few demos, including the Oculus Rift VR demo, for people to try out. We had some great conversations over the day with all of the visitors and got some great feedback on our projects.
The Tangible Memories team have been busy over the summer consolidating our learning so far. This has involved writing papers, attending conferences and continuing to think about and work on our co-design process with older people. We’re about to begin an exciting phase of turning prototypes into working designs as well as developing our ideas for our end of project conference to be held in Bristol on February 25th and 26th, 2015.
The team have presented at the British Society of Gerontology conference in Southampton where we ran a symposium in which all members of the team presented their views on the first year of the project.
Seana and Helen presented their paper, ‘Is that Thing Still on?: Storytelling, the Stuff of creativity and the curation of self in everyday life among elderly extra care home residents in Bristol’ at the Oxford Ethnography and Education.
Pete and Ki have been working on two papers for computer science/ HCI conferences including CHI2015.
Alive! activities have also been busy over the summer – commissioning an evaluation of their work and taking on new members of staff as they expand. They were also shortlisted for the Tech for Good awards in the category of Digital Health.
So the team are now looking forward to showing our installation at the Bristol Celebrating Age Festival on September 27th at the MShed and to our Autumn tea parties to be held in all our partner care homes in October. Also look out for our public event as part of the ESRC Thinking futures Festival entitled, ‘Care homes of the Future’ – further details to follow shortly.
The first series of art workshops, where we have been working with residents from a care home to create new images and objects, each capturing a significant memory, seem to have been very much enjoyed by the participants.
Some of the paintings from the early sessions have been framed and shown at the recent Connected Communities conference in Cardiff.
One resident has a fond and vivid memory of periwinkle flowers which grew profusely in her childhood garden, and so it was this enduring image that she chose to reproduce in both watercolour (above) and scribe into the surface of casting wax (below). The wax was a wholly new material to her, but she was keen to experiment and interested to hear that it could be cast into bronze, by making a rubber mould from her original work.
When I showed D the resulting bronze cast of her artwork, she was visibly delighted, and amazed that she could have produced something that looked, in her words, ‘so expensive’. In bronze, the cherished memory now has a permanence that will last beyond the fleeting moment of remembering. As I was leaving, D made a comment that seemed to support the purpose of the entire project:
‘It’s a good idea this [project], you tell them that. It’s really got me thinking. The trouble is you get so old and you think you’ve forgotten everything, all these things – but you haven’t. The memories just need fishing out.’
Hopefully as a team, through these art workshops and the many other creative approaches, we can continue to assist the residents in ‘fishing out’ their memories, which may otherwise have drifted away.
In the book, Art as Therapy, the authors Alain de Botton and John Armstrong, go some way to echoing D’s comment:
‘We’re bad at remembering things. Our minds are troublingly liable to lose important information, of both a factual and a sensory kind. […] Art helps us to accomplish a task that is of central importance in our lives: to hold on to things we love when they are gone.’
The writers also point out that: ‘Art can be a tool, and we need to focus more clearly on what kind of tool it is – and what good it can do for us’.
The collection of fragmented objects (below) have proved extremely useful and fascinating as a set of tools for evoking memories and stories, functioning as a kind of 3D collage, where each artefact recalls something different for each individual:
In the image above, there are two RFID tags, on either side of the group of objects, and as a team, we are considering methods by which these ‘art tools’ or objects, could be augmented using near-field communication technology, in order to add a layer of story content to each item.
By exploring these digital technology options, we are, to a certain extent, seeking to ‘add value’ to some of the objects with which we are working. This has inevitably led to broader discussions about value, both the inherent and tangible value of collectable family heirlooms for example, as well as the sentimental value often attached to more personal possessions and the memories associated with them.
While prevailing concepts of the word value tend to centre around money and finance, I began to think about the significant absence of currency in the care home environment. Cash is not usually required, as the residents have nothing to spend it on in their immediate everyday surroundings, and cannot easily go out into the community without prior arrangement and support. The lack of monetary exchanges that are so integral to our daily social encounters for the greater part of our lives, are suddenly missing. Paradoxically however, the high and rising cost of care provision needs an increasing volume of financial investment to sustain it.
With money comes agency and choice, and a level of empowerment and confidence widely recognized as important for any individual. Equally, art has been identified as having a capacity for agency in a book called Winter Fires: Art and agency in old age, producedby the London Art in Health Forum and the Baring Foundation:
‘Children and young people want to be thought older than they are because with adulthood comes agency – the ability to act autonomously in the world, to make our own decisions, to pursue our desires, to write our own story. And it is the loss of agency, above all through mental incapacity, that is most feared as old age advances…..
But a capacity to create…is in all human beings, including those who do nothing to develop it after primary school. Art is a capacity for agency that….can flourish, indeed, in old age and help preserve individuality and autonomy to the very end.’
As a result of both art and money being identified means of increasing autonomy, this week I will be facilitating a type of coin-making workshop with the residents from another of the care homes, before we begin to experiment with these unique objects of value in some system of exchange, a kind of micro-currency within the care home environment.
Much like D’s wax cast into bronze, the residents can start by drawing a significant memory or symbol of something important to them, into the surface of a wax hexagonal shape. The smallest ‘coin blank’ starts at similar size to the 5 pence piece, while a much larger hexagon is available for more short-sighted participants or those with dexterity issues.
Next month, in a care home where the majority of residents are suffering from the advanced stages of dementia, we will also begin experimenting with pre-decimal money, in the form of the ‘thrupenny bit’ or threepenny coin. Tim Lloyd-Yeates, Director of Alive! Activities reminded the team that in the midst of memory-loss, the strongest recurring memories are those which we have experienced between the ages of 10 and 30 years old. For most of the care home residents, this would mean vivid recollections of using pre-decimal money.
Alongside these ideas of introducing a micro-currency into the care home environment, this Radio 4 programme explored a really interesting form of alternative currency, applied to care of the elderly in Japan:
The programme summary raises some crucial questions:
The UK, like many countries, faces the problems of an increasingly ageing society. The number of people aged 65 and over is projected to rise by 23% from 10.3 million in 2010 to 16.9 million by 2035. How can we provide and pay for their care?
Japan is at the forefront of the ageing crisis, with the highest proportion of elderly citizens in the world. By 2030, almost a third of the population will be 65 or older. At the same time the overall population is shrinking, leaving fewer young working people to shoulder the burden of paying for care for the elderly.
One creative response to this challenge at local level has been a cash-less system of time-banking. Under the fureai kippu system, individuals donate time to looking after the elderly, and earn credits which they can – in theory at least – “cash in” later for their own care, or transfer to elderly relatives in other parts of the country.
Could something similar work here, or do we have very different attitudes to community and volunteering? Who would benefit from such a cash-less scheme, and who might lose out? Could it be scaled up to meet the escalating needs of a growing elderly population?
Ultimately, whether it is time or money, art objects or memories that we will be exchanging in the care home of the future, new ways of thinking about ageing are vital now, in addition to providing a sustainable and personalised means of support for everyone.
The AHRC funded us to create an immersive installation in which we recreated a care home setting in order to showcase our prototype technologies, discuss and publicise the project with others and ask people to think about community, object based story telling and tangible technologies in care home settings.
Following a comment from a resident in one of our research sites, ‘If you want them to come provide tea and cake,’ we did just that – tea cosies, a cake stand always full of traditional and homemade delicacies, and a kettle were key elements in the installation.
We also invited older people from the care settings we are working in to come along to the festival. These visits were incredibly significant for the whole team and we put a lot of energy into ensuring that the people who visited were treated to a great day out in which they were able to understand better the part that they play in the project in a wider context and outside of the care settings in which they live.
Several things struck us as important about the process of involving the older residents in the festival:
1. It was initially difficult to persuade one of the care homes that their residents would benefit from the trip as concerns about their physical welfare were seen to outweigh the other benefits of their involvement. It was worth reiterating out commitment to residents’ physical and social and cultural welfare, our belief that they would benefit from their involvement in the day and their importance to the project as whole, as well as our support for the position of the care home manager in this case. After her initial reaction the manager soon realised the need for them to engage in (her words) practices of ‘managed risk’ for the benefit of older people.
2. It is unusual to see very old adults and/or disabled people in public spaces – our residents increased the number of people in wheel chairs at the festival x8 at least. This visibility felt important to us and is something that we want to continue to do throughout the project – working up to our end of project conference which we intend to be co-designed with older people and the care staff that we have been working with.
3. Seeing the residents out of the care setting shed different light on them as individuals – processes of institutionalisation effect people in different ways- being out of the home settings bought about different reactions and interactions that we can now build on as a project team.
We have begun to co-design our third interactive book with another resident at Blaise Weston Court. When we approached the Tangible Memories group about the book project and showed them our first one, The Eye of the Hare, one man came up with an interesting suggestion. Rather than making a book about his life and memories, he said he would like to create a book about Blaise Weston Court. With so many terrible stories of cruelty and neglect in care homes featured in the news recently, he wanted to document one of the success stories and celebrate the place where he lives.
In our first session, he talked about his idea for the book, how he came to live at Blaise Weston Court and his impressions of how care for the elderly has changed over the decades. For our second session, he wrote up those ideas in two documents, which we are working with to include in the book.
We are co-designing a format to test for his book, which draws on the work we have done so far with books one and two. He is happy for the book to be introduced by him, but in order to give a good overview of Blaise Weston Court we are all in favour of involving a number of different voices including other residents and possibly staff members. For each person, we want to have a photo and short profile followed by the results of a creative activity, which we will do with them in one-hour sessions. We have come up a selection of activities, which include a range of ideas to allow for the varied abilities, interests and memories that exist at Blaise Weston Court.
Co-designing and testing the activities with other residents, will help us to further develop our blueprint.
We are in the process of creating our second interactive book, this time with one of the residents at Blaise Weston Court. It will be a collection of memories, photos and stories from her life. As before, the finished book will contain AR triggers, which allow you to listen to her recalling memories of her mother, the music she loved during the war, and lots of other audio clips and films to add depth to the text and images.
We have been visiting for the past six weeks to build up material that will make up her book. Each session has had a particular focus, such as food, music or clothing. From our conversations each week we have compiled a series of pages, taking text from things she has written and transcriptions of her words to show snippets and memories from her life.
The next stage will be to work with her to decide on which order she wants the pages. As with our first book, The Eye of the Hare, we are interested in juxtaposing memories from different times in her life, rather than displaying them in chronological order, to reflect the fragmented nature of memory. This process of ordering will also allow her to highlight any gaps or significant events/times that she would like to include.
Co-designing is helping us to develop a blueprint of tasks that we hope eventually can be followed by other older people and their carers/relatives who want to create their own books.
We were also pleased today when she said how much she was enjoying the process. She said it has helped her to remember all kinds of things that were buried, going right back to her childhood.
This is a photo of her that she sent to her husband in 1944, when he was stationed in Holland during WWII.
Some photo’s of the finished first book that we made with Pip Heywood, mine and Lucy’s dad. We are now working on similar books with Cath and Bob from Blaise Western.
Recently, we’ve started looking at ways of co-designing musical interfaces with residents based around personal playlists. I tried to come up with a model for a reminiscence profile based around music that would be simple and quick enough for carers/family and residents to complete together. After looking at many kinds of profiles, I distilled something down to one page, based around a preliminary 8-song model, like Desert Island Discs on the BBC. While residents can supply more than 8 selections, with that many, I have a baseline from which to undertake some discography explorations and see if I can find any patterns, related songs, etc. Here is the profile “record” sheet:
Working with this, D. gave Helen and I eight songs to start out with. I researched them and came up with some interesting connections so far:
I have prepared the songs and some lyrics to take back to D to see what she thinks. One interesting question is the importance of refrains versus the entire song and how choruses change and combine in the memory into medleys…
Good meeting this morning with Seana, working on the final elements for the ‘Musical Quilt’ and ‘Story Scope’ designs. The musical quilt will now use only RFID buttons with wool used to mark narrative connections. The story scope will now be slightly more modular with different physical affordances for each interaction.