At a recent conference, I was intrigued to hear about a form entitled This Is Me, which aims to ‘help health and social care professionals build a better understanding of who the person really is’, when a person is suffering from dementia and about to enter a new care home. I decided to download a copy from the Alzheimer’s Society’s website, and try responding to it myself:
It was very difficult to summarise my identity and life history in four lines or less and I am only 38. I can only imagine how much more challenging and upsetting this task becomes when you are over 70, 80 or 90 years old, and are perhaps struggling to recall some of the more significant moments or events. Personally, even for me, it was a strangely emotive experience to try and reduce myself to a sentence or two, or a list of points at best. I felt frustrated and humiliated that a single piece of paper should represent the complexity of any human being, and be handed over to care staff with the title of the form declaring ‘This Is Me’. This is not me – I am not a printed sheet of A4. I was also at a loss to know how I should respond (despite the lengthy Guidance Notes provided) to such open-ended statements like ‘I would like you to know…’ (4 lines) and worried about providing the ‘correct’ information under each section. The idea of completing this form, even with a trusted friend or family member to assist, must be very distressing for new residents on the move at a confusing and challenging stage of life.